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Off Balanced
Dealing with Vestibular Disorders
Recent Entries 
7th-Oct-2010 05:06 pm - POTS
Does anyone have POTS?
30th-Apr-2010 04:20 pm - dramamine and bonine
Do you think it means anything if Dramamine and Bonine don't work on your dizziness and motion sickness?I actually had an adverse reaction to Dramamine once.Is there common reasons that might happen?I also get episodes of light headedness and near fainting.My ENG/VNG was normal.It was also done by a lady that was in a hurry to leave to pick up her kid.So she skipped the part she puts pressure in your ear.
2nd-Feb-2010 10:48 pm - dramamine
Has anyone had an a weird reaction to Dramamine or Mecilzine(or similar drug from that family)?Do you know why it happened?

Has either drug ever caused you to have a migraine?

Does anyone know why taking Dramamine if you have hypothyroid would cause a problem?
2nd-Feb-2010 05:32 pm - endocrinology?
Does anyone know the connection between endocrinology problems and balance problems?
1st-Feb-2010 10:09 pm - AIED/VNG/Dramamine/Migraine?
I recently went to my doctor because I've been having issues with motion sickness over the past month.Which is new for me.Even a half mile makes me dizzy.My primary care ordered an eng/vng test.Has anyone ever had those?Did it help you figure out the source of your dizziness?How common is nausea/vomiting?Will they stop if it bothers you?I believe there's a suspicion I might have an auto immune ear disease.Does anyone in here have one?I can't walk a straight line.I showed abnormal responses to other tests she did.Dramamine 2/Bonine/Melclizine doesn't work on me for dizziness.A month ago it caused a migraine.Dramamine(not 2) worked one day.The next it caused vertigo and blurred vision for about 4 hours.It was scary.It has never caused that reaction for me before.Then it gave me a migraine.Not sure why it would cause these reactions?If it's because of other medical issues I have or drugs I'm on?
14th-Oct-2009 12:30 pm - Sinus Surgery
cat-artemis running
I finally have a diagnosis! I have been having constant vertigo (or really, not spinning, but rocking) for the last 6 weeks. Extreme fatigue, concentration difficulties, and much more! The ERs told me to see my regular doctor, my regular doctor told me that since my symptoms were worsening so quickly, I needed to go to the ER. No one would give me any testing!

I finally threatened the Emergency Room and got "fast tracked" for an MRI, which I had last Thursday (after already suffering for 5 weeks). The MRI showed sinusitis. All the doctors thought I had MS (but still had refused to do testing to find out for sure...which makes me mad, but I'm just SO relieved it isn't MS!), but it's "only" sinusitis.

The ENT said I have complete blockage of my right maxillary sinus, but since bizarrely I am having no pain, they call it "Silent Sinus Syndrome." It's fixable, but now I just have to wait for my surgery to fix it, which hasn't even been scheduled yet.

The imbalance, as I'm sure many of you can relate to, has destroyed my life as I knew it. I was working full time and had to quit because I couldn't sit up that long and couldn't drive myself to work. I was taking online classes which I had to drop because I couldn't concentrate on complex thoughts due to my fatigue. I am a mom of 2, and one day I realized I hadn't bathed them in a week (that's the day I called my dad and begged for help, and he came down and helped me! I just hadn't realized how much I needed help before that moment!). Also, I crochet, design patterns, and sell them online, and have had to turn down custom orders and can't design new patterns because crocheting makes me spin! It's been a ROUGH 6 weeks.

I have some cool MRI and CT scan pictures you can look at, though. Go here to see them. You can see the sinus blockage, which the doctor said has probably been accumulating for years. YIKES!

Anyone had a sinus surgery before? I'd love to hear tips if you have any. We plan to send the kids to California to be with my mom so I don't have to worry about them while I'm recovering (this has been so hard on them, but hopefully they'll have so much fun with her they'll forget about Sick Mommy).
Psyche
Just a quick update to let everyone know that Balance Awareness Week is coming up!

From the Vestibular Disorders Association
The thirteenth annual Balance Awareness Week takes place September 20-26, 2009. The Vestibular Disorders Association (VEDA) established Balance Awareness Week in 1997 to raise awareness about the importance of balance and inner ear health to general wellbeing and quality of life. Millions of people are affected by inner ear balance disorders. However, getting effective treatment is frequently complicated by the challenge of diagnosing the specific source of the problem. The impact on an individual's work, family, and personal life is often made worse by the disorder's invisibility to others. Balance Awareness Week was created to improve public understanding of inner ear balance disorders and their impact on the lives of affected individuals of all ages.

Please help VEDA to elevate public awareness about the challenges of living with an inner ear balance disorder by blogging about this event or by contacting your local newspaper, television, and radio stations.
1st-Sep-2009 06:38 am - New kid
San
Hi guys, my name is Kayla, I'm 19 and live in Maryland. A few weeks ago, I had my first 'episode' of severe vertigo. I was trying to go to sleep when I rolled over and suddenly felt extremely dizzy. Like I'd just been ripped away from my bed and was spiraling. It freaked me out but it only lasted for a few seconds - until I turned over again. I was getting nauseated and increasingly scared. I went and woke my aunt up, I was crying and scared, and I told her what was going on and she said I had vertigo. I spent the rest of the night fighting the dizziness and I finally got a little bit of sleep. When I woke up, I googled around and found Benign Paroxysmal Positional Vertigo, which lists 'rolling over in bed' as one of the causes of the dizziness.

That night I slept propped up with pillows and experienced no symptoms, as I have done for the last few weeks. Now, at one point about two weeks ago, I'd tried to sleep lying down and I got dizzy, so I went back to being propped up and slept through the night. When I woke up however, I was violently dizzy to the point where I couldn't walk properly. I had my aunt take me to the ER because I really wanted this fixed. I threw up twice there, and they prescribed me meclizine and gave me a shot of valium.

I haven't experienced the symptoms since then.. but I also haven't tried to sleep lying down. Supposedly, this goes away on its own, but I'm still scared of it. D:
21st-Aug-2009 01:55 pm - Balance Shoes?
Psyche
I just saw a thing on CNN about shoes that are being advertised as making your legs stronger, and apparently it's shoe technology used by physical therapists to increase people's "position stance". That sounds like balance to me. I looked up the one brand they showed, Reebok Easy Tone and it says they create a slight instability when you walk. Has anyone ever used shoes like this? Are they a nightmare, or do you think they might help?
26th-Apr-2009 02:27 am(no subject)
four/romana

Hello everyone, I'm new here.

For the past, oh I don't know, ten years (I'm 23), I've been suffering from a strange... something on the right side of my face and head. I'm not quite sure how to describe it, but the most appropriate word would probably be ''tension'' or ''pressure''. To be more clear, it's as if there a ''fullness'' of sorts in my right ear, as well as a feeling of having an elastic band ''tugging'' at the areas from around the right side of my skull, jaw, ear and eye. What's more, it feels as if there's something in there which has ''pushed'' at my ear, making me able to move  my right ear (not my left).

I've had my head scanned and they found nothing. A neurologist suggested it might be caused by muscle tensions, but I myself feel fairly sure that the problem lies in my inner ear. Over the years it's been pretty steady, only worsening when I'm under stress. However, over the last year or so it seems to have worsened and what's more, it seems to have affected my memory and my ability to concentrate, as well as my hearing.

I'm quite determined to get to the bottom of this because I can't live with it anymore. I'm going to keep bothering the hell out the doctor.

Does anyone here suffer from anything similar?
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